Save Jace

I’m going to start this update by apologizing for the delay in updates.  I know it has been “too long.”  People are constantly asking about Jace and I know I need to update more often.  I hate to say I have been too busy to update, so I’ll just say it’s been hard to find a few minutes even to sit down at the computer and process the thoughts it takes to update you all.  However, now that it has been 3 months, it seems like there is sooooo much to tell.

Quick up date on us:

Jarron is doing great.  He is growing so fast and I wish I could just keep him this small forever.  He is 3 months old and coming in strong at 14 lbs.  These days, he gives us little sleep still, and we are having a good time trying to keep him occupied as he seems to get “bored” easy.  If that is possible for a 3 month old, I tell you, it is.  He likes to stay busy, and keeps us busy as he has no desire to even attempt to roll-over or move for that matter.  His smile, like Jace’s, melts my heart.

I got a new job mid-January and have been going at that full time since then.  It’s in accounts receivable and I love it.  Anyone who knows me knows I love numbers and deadlines.  I like to be busy and I like control.  There is no better place to find that, than in accounting for a corporate company. I am still working part time for the radio station doing their books.

Josh is still working for L&F and loving his job.  He stays busy and we are constantly on the run.  He has been doing a lot more weekend work for them as well which keeps us busy, but also gives he and I time together every now and then.  If we are not here, we are definitely there.  So, not to make excuses but you can probably understand why we are running around in circles trying to find which way is up and have yet to determine that.  However, we are seeing light at the end of the tunnel so that is great.

As to why we’re here:  Jace is doing FANTASTIC.  He has only had 1 MRI since the last update in December, and daddy took him this passed Friday.  Though we don’t have the official reports, we have seen the scans and though Josh and I are not Drs, we are getting pretty darn good at looking of these scans of Jace’s brain.  We have, however, heard from Dr Alter who said the report says there are no changes in scans from the last MRI.  Though that is the result we get every MRI, it does not lose its luster as there are little changes being made every time.  This is the first time we have not done an MRI in at least 6 weeks, so this is the longest we have ever been without and MRI. 

As you know, Jace is continuing with the chemotherapy, Temozolomide, which he takes orally approximately every 4 weeks.  However, we didn’t do any rounds of chemo in February, since we started in mid-January.  So now the time in between rounds of chemo are getting further apart and we still show no signs or symptoms of recurrence. 

In February we went back for our 6 month check-up with Jace’s radiation doctors at MD Anderson.  The questions they asked us were mostly developmental questions and progress questions.  Though Josh and I are his parents, we try and stay outside the box when it comes to Jace, but he truly has us stumped.  They had warned us in the beginning that there could (and most likely would) be all kinds of complications with his growth, his development, his hearing, his kidneys, his nerves…and so on. We have yet to see anything, besides the triangular patch of hair missing on his head that would even entertain the idea that this child had ever been sick.  Praise God.  We gave it all to Him in the beginning and He continues to amaze us every day with his Glory.

I apologize again for the delay in the updates and promise to try and keep up better with what is going on.  I will update with some recent pictures of Jace and Jarron here in the next week or so when I can get to my computer. 

Thank you for the continued thoughts and prayers!

Joshua, Jamie, Jace and Jarron