Save Jace

Halloween day, we spent 9 hours in the hospital for a routine MRI.  It was crazy ridiculous and I am glad I waited until today to actually write about it so I dont bad mouth them any more than necessary.

It was crazy.  First Jace was not scheduled until 11.  You try telling a 3 year old they cannot eat or drink ANYTHING all day.  Then getting to day surgery and having him sit in a crib sized bed until it was finally our turn at 4:30…yes 4:30.  I understand all things can happen in hospitals.  I understand emergencies.  Heck, we were an emergency MRI once.  But 6 and a half hours after our scheduled appointment is ridiculous.  He was npo.  There was no communication between the hospital staff and myself letting me know a time frame.  We could have fed Jace that morning, and he could have had clear liquids up until 4 hours before his procedure, but instead he had had NOTHING to eat or drink in 19 hours before they finally took him back.

We finally left the hospital around 7pm and since it was Halloween we wanted him to enjoy some of it since he missed his school party and dressing up and all that.  So we went to his God Parents house.  It was fun.  He had a good time once he got over the loopiness of the sedation.  He was a skeleton.  We did not get to go trick or treating because he was not sturdy enough, but I dont think he minded.  We had a good time anyway.

So today the Dr called and we got the results from that MRI.  There is no change.  No new growth and no added contrast from the last MRI.  We started his chemo again on Sunday night and have 3 more nights of the dosage.

I asked the Dr how long he planned on the chemo and he said he was “planning” on a year after treatment.  I asked him if this chemo was really necessary and he said that if there are still cells in his head, then the chemo is most definitely necessary as it is keeping the cancer cells under control.  But if there are not any cells, then the side effects (short and long term) are not that bad to continue for right now.

We have scheduled another MRI for another 4 weeks and at that time, the Dr is going to do a spec MRI which will give us the chemical readings from the cells in his head and hopefully tell us more than “there is nothing to be seen” on the MRI.  At that time, if that MRI tells us anything we will make any changes if necessary.  But for now, we just stay on track with MRIs and chemotherapy every 4 weeks until further notice.

We are elated and praise GOD for all good news that we continue to hear.  And though it feels like no news, it is great news that there are no new growths. We continue on this journey with Jace as we have from day one.  Let God control the results and we just live for him.

As for baby news…I am 37 weeks pregnant today and he is not ready to come yet, so we wait.  Again, another thing only in Gods time and it is not time yet.

God Bless each of you and thank you for your continued prayers.
Joshua, Jamie and Jace Sandoval

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