Save Jace

Not much to write about really.  Jace is doing great.  Still has the bandage on his head from our table incident.  Last Tuesday Dr Alter removed the bandage but left the steri strips hoping to let it get some air and within a few hours Jace had picked 2 of the 3 off.  So we had to go back up to the Drs office and let them put them back on.  He bandaged it up and we decided it would be best to just leave it covered.  It seemed to be healing pretty well.

 As of last week, his counts hadn’t dropped any from the heavy chemo he was on.  Dr Alter seems to think that the chemo wont do much to him, that the dramatic fall in his counts last time had alot to do with the combined radiation with the chemo he was on.

We have a Drs appt tomorrow and will have his CBC drawn in the morning before we go, so we should know more about how he is doing then.

Mommy update:  The pregnancy is going really well.  We are about 30 weeks now, so time is winding down.  We had a little scare when I failed the screening for the gestational diabetes test last week…but after the 3 hour fasting test a few days later we are all healthy.  He is just a growing boy.  Guess I wont be having anymore Whataburger chocolate shakes the night before any of my appts anymore (haha). Everything is going great.

Jace has his MRI scheduled for September 30 as of now.  Hopefully this one will tell us alot more and give us more insight as to where we stand with all of this.  Pray for Jace….we want no signs of illness!!!!!!

God Bless you all
Joshua, Jamie and Jace

Today we had a little scare that sent us rushing to the emergency room. Jace got into an accident that pushed his head into the corner of a marble table. It cut a hole in the side of his head right behind his ear that you could fit a skittle into. When we noticed the hole, Josh and I scooped up and headed to the emergency room. We were scared since he is on this chemo right now and his counts and platelets are low that his blood would be thin and just pour out. But, as always…someone is watching over Jace. It didnt even bleed. It coagulated before we got to the hospital. It was amazing.

Dr Alter was there in a matter of minutes. He looked Jace over…cleaned and butterflied the wound. He got a tetanus shot and some antibiotics and we were home within 5 hours.

It just goes to show that God is really and truly in control of everything. I believe he put his hand on Jaces head and said….not this kid, not right now. As he is always doing.

God Bless
Joshua, Jamie and Jace

Jace had his MRI today.  We met with our Oncologist on Tuesday and everything seems to look really good.  We have gone ahead and started the heavy round of Temazolamide chemo this week.  He seems to be handling it really well even though it is such a large dose.

 The MRI results were as we expected.  There is no change in the slides at all from right before we left for Houston.  Though we knew there would be little or no change, its still hard to process sometimes.  Its the hurry up and wait game we continue to play.  This MRI, though it doesnt tell us much, does tell us there is nothing new.  His spine is clean and the brain is exactly the same as before.  The spot that they think could be recurrance is still there, however it has not changed AT ALL.  This could mean nothing and this could mean everything. 

They are still not 100% sure that it is recurrance and we only pray that it is scar tissue as we hoped before radiation.  When Josh asked the Dr if it “could” be scar tissue, the Dr said he has seen it happen before.  We can only hope and believe for the next 4 weeks that this is what it is.

The plan right now is to wait another 4 weeks and do another MRI that will hopefully tell us more.  I will keep you updated as the weeks go by on Jace and sorry it has taken me so long to update this time.

We are GLAD to be home and back to “as normal as can be.”

God Bless you all and thank you for your continued prayers!
Joshua, Jamie and Jace