Save Jace

Hi All!

Jace is doing well this week. Last weekend Josh came to Houston and that was nice. We took Jace back to the water park which he loves, here are a couple of pictures. In the one where he is running away from us, you can see the burns down his back. The closeup is at dinner over the weekend while daddy was in town. The last picture was taken today, after radiation. Jace is NPO so when he wakes up from treatment, we sit out in the lobby and he gets his food. You can see the scarring on the front of his head in that picture.

Jace at Dinner

Jace with Mommy

Jace with Daddy

Jace running around the water park

Running away from us

Creating his name with beads and posing

And this one is taken today 08-14-08 after treatment

Last Week:
Monday was a hectic 11 hour day at the hospital as we had all our Drs Appts, plus he did end up having his very first red blood transfusion.

We first met with the Radiologist who was concerned about the scabs and burning on the back of Jaces neck. She prescribed some prescription medication for his back instead of just the lotion they recommend. The top of his head is starting to turn a little brown and already has a scab starting on it also…besides the itching, neither of them seem to bother him too badly. I put the cream twice a day and in only a few days it seems to be working on the back of his neck for sure.

Radiation is going well and I think Jace is even getting used to it. We have the same anesthesiology team every day and he now walks into the room by himself instead of running the other direction. He walks in everyday and greets his team with a big “hello again!” When he is about to be sedated I pick him up and sit on the table to cradle him so when he falls asleep he is secure. Well today, I got on the table before him and he was standing below me and says “Momma you forgot me.” 23 down, 9 to go! Can you believe it???

The oncologist was concerned about Jaces counts coming down over last week even though he was off the heavy radiation and we also took him off the chemo for a week. But if we stick to the original 10 day cycle, where his counts drop off at day 10, then Sunday would have been it…and that all makes sense. So they gave him the red blood transfusion on Monday. it was a 3 hour process, that basically involved Jace and I sitting in a little room on a bed watching Diego and eating room service hospital lunch.

We simply call anything that they hook up to Jace through his mediport medicine, and a few times he would grab the line and say “Momma, I dont need this medicine.” But once I hid it under his blanket we seemed to be fine. About halfway through the transfusion, the nurse came in and told me that the transfusion would help him with bringing his energy and appetite back up. But as we know, he hasn’t lost much energy…and guess what….the blood transfusion only gave him MORE energy.

Today marks Josh and my 4 year Anniversary. And though we dont get to spend today together, we are excited to be coming home for the weekend. We have alot to celebrate. In only 4 short years, SO much has happened that has brought Josh and I closer to God and closer to each other.

Everything else has been going pretty well too, and for the many that have been asking, the pregnancy is going great! I am tired alot, but I think that would be expected with all we are doing even if I wasn’t pregnant. He is moving alot and that resassures me since I haven’t been to see my Doctor since we left back in July. Its tough going through the little milestones without Josh, and I’m sure he is missing it too. But Jace is really excited. At night when the baby moves, he likes to put his head on my tummy and say “Hey Brother, how are you doing?” And when the baby kicks, Jace laughs and picks his head up and says “Mommy he has the hiccups.” Its really cute.

God bless each and every one of you!
Keep praying that Jace and I both stay strong.

Thank you for all your support!
God Bless!
Joshua, Jamie and Jace

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