Save Jace

Well, here we are in Houston and we had Jace’s First Consultation with the Radiologist Dr. Mahajan. We know that each and everyone of you have been praying for Jace for the past year and those prayers have been greatly appreciated!

But Jamie and I ask that you say a little extra prayer tonight!!!

We found out this morning that Jace has a minor growth roughly 1/2 inch x 1/5 inch and they are referring to it as “Reoccurring Disease”. So, what we thought would be a routine visit to the Radiologist for a consultation has turned out to be a meeting to let us know that there are other steps that we are going to have to take before we start radiation!

Now granted, they aren’t “Certain” that this is what the enhancement in the MRI is, but there isn’t much more that it can be!

Dr. Mahajan and other Dr’s that form a board will be looking over all of Jace’s information that they have received and will let us know what they believe might be the best action to take. So, we are patiently waiting to hear their opinion and we will act as soon as possible on whatever is decided!

The plan right now is to either do a Craniotomy to remove the growth or to pull a sample and run a biopsy. Also they will more than likely pull fluid from his Omaya Reservoir to check for “cell activity” which will keep Jace from having to get a spinal tap! On a good note, his Spine MRI came back completely clean!

Tomorrow we should find out whether or not we will be coming home for the surgery, or staying here in Houston to do it! We have been extremely fortunate up to this point and I have faith that things will continue to keep on an upward path!

Jamie’s Brother put it best which was a reminder about this whole situation from the Get Go… he said “Jamie, the chemo was supposed to keep Jace alive long enough to reach the age of 3 so they could radiate” Well the Prayers and Medicine worked and the “Ultimate Surgeon Upstairs” has brought us this far and he will continue the guide Jace, Jamie, Me, all of you, as well as the Dr’s, Nurses, and Others involved.

We ask that you keep Jace in your thoughts and say a quick little extra prayer wherever you may be tonight!

Leave it to Jace to make this whole situation that much more interesting!

We will keep everyone up to date as soon as we know more information!!!

Love to All and God Bless,
Joshua, Jamie, and Jace

Mr. Independent!

Jace and I totally rode the ferris wheel and now thats all he talks about….

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