Save Jace

Hey all!

We just finished week two of Jace’s radiation. Jace is doing fantastic. He is ALWAYS thrilled on Fridays since they take his metaport (called a port-a-cath here) out. They access him with the needle on Monday morning and since they sedate him everyday, they just leave it in all week. Fridays are exciting cause when he wakes up its gone. He reaches down, pulls the band-aide off and says…”I’m all done, momma.”

Thanks to a wonderful tip from a close friend, we have been giving Jace his anti-nauseau meds every night 30 minutes before his chemo and that has done the trick. There was none this week…that makes life easier on me and the 45 minute car ride every morning. And on Jace, I’m sure.

They said that he might start to get small burn marks on his skin from the radiation, and I have yet to see any such marks. There is no redness at all down his spine, let alone any blistering…

His hair is thinning a little bit, but there are no patches or bald spots of any kind. I can’t really tell if there is any change or if his hair is just thin naturally. Mine is…who knows?

His activity level is NORMAL. He is active and crazy just as normal. He dances around and acts like Jace….I think radiation is making ME tired, not him…. It is absolutely a blessing and this proves only God is in control of Jace.

I believe 100% that our prayers are being answered and that God is guiding the radiation every single second it is on Jace. Every day when he goes back into the room, I get to hold him until he is sedated. And every single day, I say a prayer that God guides the radiation to only radiate the bad and to leave the good cells alone. I believe he is answering our prayers.

With the finish of this week, Jace has had 9 days of radiation. He is only getting 13 total of the entire brain and spine. That will put us through next Thursday and then on Friday he will start the proton therapy. He will receive 18 of that treatment, but it will be the beam we originally discussed back in the beginning. More focused on the tumor areas and a higher dosage of radiation.

Since the proton therapy is on a different machine in a completely different building, they have to do simulation on Jace. So Monday, the 28th, will be a busy day for us. Please say a little prayer as he will be sedated early that morning for radiation, and then again around 1PM for the proton simulation. Since he cannot have any food or drink before sedation, its going to be a long morning. Rest assured he will probably order 1 of everything on the menu, wherever we go when he wakes up as his appetite has not faltered any since starting treatments.

Next Wednesday they are going to test Jace on his knowledge. Just your basic skills that a 3 year old knows, colors, shapes, letters, numbers…they like to test kids before and after radiation to track results I guess. I am interested to find out the results of this test on him….lol. I will hopefully know those results by my next update so I can share that info with you too…

Week 2 down…5 to go.
With God as our Guide and Jace as our leader, we will get through this.

Here are some pictures of our day:
This is Jace waiting to go back before radiation…he likes to put puzzles together.

This is how I hold him during sedation. The milky white substance going into his port a cath is the meds to sedate him.

This is the last thing I see before I leave the room.

After treatment, I wait about 30 minutes before trying to wake him up. Then I give him some food and drink and we wait around until he is awake enough to sit up in the car. This picture was taken one day AFTER treatment waiting for our car at the valet….
Yes….typical Jace!

God Bless each of you.
Til next week.
Joshua, Jamie and Jace Sandoval

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