February 27, 2007

We got the Prelimenary Results back from the MRI that was taken of the Head… (we are still waiting on the results of the spine) and looking at the Preliminary Head MRI, there is still a Tumor Mass roughly 1 1/2 inches x 1 inch in size. We will wait for the results of the Spine MRI as well as the results from the Bone Marrow Sample and Spinal Tap. We are hoping that all comes back Negative with the other 3. If the Spine MRI comes back with “Activity” then we have already been told that “Surgery” probably wouldn’t help! If the Spine MRI does come back Negative then we will probably be looking at a 2nd Brain Surgery REAL soon!!! (probably next couple of days) The race is on and we’ve already faced some bumpy roads and got through them with the help and support of God, Family, and Friends. Now we are ready to climb any obstacle that is put in front of us! God Bless You All!!!

February 28, 2007 ROUND 2: They did find a tumor mass in Jace’s head that measured roughly 1 1/2 inch x 1 inch. We spoke to the Oncologist and he just informed us that it is “New” mass that has grown in the past month! so now we know that we really are dealing with an aggresive disease! We waited to hear from the Neuro Surgeon to see if he is going to operate again to remove the mass and then we would start chemo therapy right away, or if we are going to just start chemo treatments and hopefully slow down the growth. The Neuro Surgeon finally came in and spoke with us. He said this definetely wouldn’t be the first or last time that he would have had to go back into the head to remove something on a patient! He asked how Jace has been since the last operation and asked if we thought he was ready (body and health wise) for another surgery…. he said exactly what we already knew… go in take it out and start chemo asap! so Jace will be having a 2nd brain surgery on Wednesday March 7th. Thank you all for the prayers and support!!!

Emotionally: drained. Tired.  But still up for the fight.  I mentally prepared myself for everything possible with the news we had.  I was prepared to hear some pretty nasty things with these results, I was never prepared to hear that the tumor had grown back an inch and a half in the last 3 weeks.  Just wasn’t.  Its terrifying to think that in less than a month my “baby” who isn’t supposed to be going through any of this anyway is having his second brain surgery.  The facts aren’t as traumatic as they were though…we know what to expect now.  We know how he will look after surgery and how quickly he recovered from the last one.  We are ready for this….we are.  Next Wednesday he is scheduled to go in and they will take the tumor out again.  While he is under, they will administer his first dose of chemo directly to the spot in the brain and then we will wait for the head to heal and start chemo as soon as possible after so that we can start to fight this thing before it starts to grow back…again.


My baby is so strong.  He is.  He is going to be the amazing one through all of this and it amazes ME everyday to see him. 
Jamie

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