Feb 16th, 2007
February 16, 2007 Update
Jace had an “Atypical Teratoid/Rhaboid Tumor” It is extremly aggresive!
We met with The Oncologist today and he went over his plan with us. In 10 days Jace will undergo another MRI as well as have a bone marrow sample taken out, a spinal tap done, and have his medi-port put in. The medi-port will be used to administer 4 different agents of Chemotherapy.
Josh did ask if this Tumor was Metastatic and the Dr. said from what we’ve seen so far, it is NOT. Of course he can’t come out and tell us it definately has not, but he “seemed” as hopeful as we are. If the cancer has not spread to the rest of his body, our chances for survival are greatly increased.
Jace will undergo 12 months of Chemotherapy with each session putting him in the Hospital for 4-5 days each time he gets treatments. The plan is to have chemo administered every 4 weeks.
After asking questions and talking to the Dr. there are a few things that are in Jace’s favor… All we need now is to pray for a couple more things to stay in Jace’s favor and it will make things that much more easier! This is going to be a long 12 months with plenty of health ups and downs, but we are preparing ourselves for this long battle!
After yesterday Josh and I are alot more clear on where we stand with this disease and we are ready to fight it. At one point the Dr said, “I am trusting you with his life, just as you should trust me.” The Oncologist we are going with has been in the cancer business 8 years…1 year at MD Anderson, 2 years at St Jude, 2 years at Duke and has spent 3 years here at Driscoll Childrens Hospital. In all his years he has only worked with Pediatric Brain Tumors.
This particular tumor affects only 1% of children across the country! Leave it to our little man to stay as unique as he can - even in brain surgery!
We love each and every one of you that send words of praise and hope our way. We are on our last “waiting period” before this fight starts and we pray that you will all stand by us and pray for us so that after this year we can all celebrate is Jace’s success!!
Jamie
Birthday - April 19
I go to school with natalie and she is a very special person and so i know your son is as special as she is. I wish you all the best luck in the world and my prayers will be with you and your family through this event. Thank you for devolping this site.GOOD LUCK!!!!!
I don’t even know you but, I too am a mother to four children and three grandchildren and if anything ever happened to them, especially something as catastropic as brain cancer; I’d be floored. I admire you for your strength in this most difficult time and know that God is your strength as well as Jace’s. You and Jace are in our prayers.
We all love Jace very much and are ecstatic to hear how much better he seems to be doing ! Im excited to find out he will be at Christophers birthday ! Latham cant wait to see Jace too ! Only a couple more months !
Love you very much